The most Harrowing and Ultimate Goodbye

“The days will always be brighter,
because you existed.
The nights will always be darker,
because you are gone.”

This time last year was the worst journey I made of my life, the journey to visit you for the last time, knowing it really was the very last time. Knowing that later that day your forever bed would be sealed, never to be opened again. As your family arrived to see you, I carefully lifted your fragile and broken little body from your bed and cradled you, rocking you backwards and forwards, treasuring what would be my last few moments with you. All eyes were on you, waiting for God to undo it, all watching you, waiting, waiting for a miracle. That miracle never arrived. So as your family kissed your tiny beautiful fluffy hair for the last time, their tears like a leaking faucet landing on your skin, they said goodbye, goodbye William. Then it was just mummy and daddy. Mummy stood holding you, the need to rock you to sleep long gone, but mummy did it anyway, still instinct, those rocking motions part of mummy’s being, part of what mummy is for, to soothe you, to comfort you, to make it better. But, mummy could no longer make this better, the primal screams from mummy’s body gone from the day you left, replaced only by muted sounds. Daddy pulled us in to a big daddy bear hug, his arms wrapped around mummy, you our baby tucked safely between us, for the last time, for the last time ever, we stood as a unit, as a family, for the last time ever we stood there completely whole, we were one. We were us, we were three. We cried for you, we cried for us, we cried over you, haunted forever by this defining moment. Daddy loosened his grip, he placed his hand on your head, left a lingering kiss on your forehead and he told you that he loved you pickle. Then he left.

It was just me and you. Me and my baby, my baby and I, William and Melissa, mother and son. Just us. I returned to the seat, I drank you in, after nearly four weeks, your beautiful pink plump skin was starting to give in to nature, a purplish, grey hue, but you were beautiful, your long dark eyelashes extending from eyes that mummy would never see again. Mummy traced her finger down your perfect button nose, taking in the contours of your lips, little lips that hid your first teeth. The glitter in your ear catching the light, mummy had asked the pathologist not to wash you, you needed to still be you, still needed to have that silky soft hair, and you still needed to have glitter in your ear from the little Christmas tree that you made mummy and daddy two days before you went to Heaven. As I sat there, holding you, my mind could not accept that you would not wake up. You were so peaceful, I expected you to scrunch your little face up any moment, kissing goodbye to milky floating dreams and coming back to reality, but it didn’t happen, you remained still, you remained silent, mummy remained broken, just like you.

I hadn’t really thought about what I would say to you that day. I just begged, I begged and pleaded with you to wake up. “Please sweetheart, please wake up, mummy’s here. Mummy loves you so much, please little man, please.” But you didn’t, my chest heaving with every breath, my heart aching with every beat, the pain palpable. “I’m so sorry sweetheart, I’m so sorry that I couldn’t protect you, that I couldn’t save you, I’m so sorry that it’s you and not me, sweetheart I love you so much, I love you, please, baby.” But no matter what I said you didn’t move, there was no sharp intake of breath where you woke me up from this wretched nightmare. I had to say goodbye, I had to put you down for the last time. I knew my time was limited, your funeral approaching, I knew that at some point it would be the last time I touched your foot, stroked your cheek, ran my fingers through your hair, held you and kissed you. I knew that in a matter of moments I would see you for the last time, ever. I wanted to open the door and run away, run down the country lane with the wind in our hair, I wanted to keep on running and never stop, to never be apart from you, for them not to take you from me, but I couldn’t. So, with the heaviest heart, and the hardest footsteps I rose and made my way over to your coffin, but I couldn’t do it, under the weight of the world I sunk to the floor and I could barely catch my breath as I tried to talk to you. My beautiful little miracle baby, the sweetest natured little boy, the most angelic and perfect little man this world would ever see was gone. I stroked your cheek one last time, I gently rubbed my thumbs over your eyes, I ran my fingers through your hair, I cupped your head in my hand and bought your head towards my face, as my lips met your forehead I kissed you, a mother’s fingerprint on her child’s skin. I squeezed you so tight and inhaled your sweet scent for one last time, and with the most agony I have ever felt I stood and I gently placed you in your forever bed. Never to hold you again.

Your legs naturally crossed, mummy placed a photo of mummy and daddy on your chest, your arms hugging it close. We were going with you wherever you went. You looked so peaceful in your beautiful satin white coffin, like you would wake at any moment, but I knew you wouldn’t. I just wanted to curl up in the coffin with you and die, our arms forever intertwined, our bond inextricably woven, untouchable. Just me and you. But I couldn’t. Your little coffin only 30 inches long. There was no room for mummy. I took one step back and just looked at you, this was never meant to be, a sight I could never have imagined I would ever witness. I came closer, I knew it was time, I had asked them to give me a time limit, knowing I would never leave you given the chance. I felt you chubby little foot in my palm, I allowed the shape of your legs to lead my hand up over your body, taking in your little legs, the little legs that had just taken their first steps, over your little belly, and down your arms to your hands. I placed your hand on mine, finger to finger, fingerprint to fingerprint, your little nails, perfectly formed, I placed your hand on my cheek one last time, I placed my hand on top of yours and felt your delicate touch against my face, if I close my eyes now, I can feel you, I can feel your touch and your tiny little fingers pressing on my cheek. I placed your hand over the photo and for one last time I leaned over and I placed my cheek on yours, I put my arm under your shoulder and I hugged you tight, my hand on your left cheek holding us together in unity, as one, as we had started out, our life as one, in one body, death had broken you, it had broken me but it would not break US. I removed my arm and I held your head in my hands, our noses touching, I kissed your lips, I kissed your cheeks and you little button nose, then I planted a kiss on your forehead. As I held your head to my lips, tears streaming down my face onto yours, I knew this was it. I had to let you sleep. I had to let you go. So, mummy made you comfortable, she straightened your hair out, tucked you in to your little blanket, “I’m so sorry baby, I’m just so so sorry, please don’t blame me. I love you, I love you so much, my boy, my everything, my life, I miss you, I’m just so sorry my darling boy. Goodnight sweet William, I love you, mummy loves you.” One gentle kiss on your head, the last kiss, I reached my hands up and I closed the heaviest object I would ever encounter, the lid to your coffin, I had to do it, it had to be me, I had to be the last one that would ever see you. The lid closed and I stepped back and I just stood and looked, I wept with every fiber of my being, knowing you were in there but I couldn’t see you, I would never see you again, I slowly stepped backwards out of the room, my eyes not leaving you, my hand found the light switch and with one movement the light was extinguished. I opened the door, still not taking my eyes away from you. I circled out of the door and stood for what felt like a lifetime, and slowly I closed the door, the door to my life. My family didn’t say anything to me, I didn’t say anything to them, I walked out. At that point I knew what giving up felt like, at that point I gave up. There would be no miracle, God would not be undoing this, you would not be waking up. Life had gone to far this time. I got in the back of the car, and I was driven away from you. Never to see you, touch you, feel you, smell you or kiss you ever again.

I sat in your bedroom when I could see the hearse creeping up the road, I could see your name in the most beautiful white flowers, I ran down the stairs and stood at the front door as I saw you being driven past, the hearse dwarfed your tiny little bed. I made my way down to the road and waited for the car to turn around and come back. Mummy had requested a car that mummy and daddy could sit in with you and take your last journey together. I climbed into the hearse and I pressed my hand on your bed, like somehow the harder I pressed I would somehow feel your baby-soft skin again. I did not take my hand off your bed the entire way. It was a slow journey, not too far, but far enough. After we arrived I could see people’s faces, your tiny coffin clearly making a devastating impact on everyone. Your flowers were removed, WILLIAM and GRUMPUS taken into the crematorium, followed by a pillow and a little reindeer, your favourite and two red roses from mummy and daddy. It was time. For the last time. I carried the heaviest thing a mother can ever carry down the longest aisle I have ever had to walk. It was time to say goodbye, but it wasn’t goodbye, not for me, for me it was “Goodnight sweetheart, I love you, see you soon.”

Your last journey xx Your last journey xx

www.justgiving.com/williamoscarmead

My inspiration for 2016 – William

My boy and I

My boy and I

As the evening draws in and darkness approaches, I say goodbye to 2015, but I do not welcome 2016. For I would not have cuddled my baby in 2016. This year I didn’t hold my baby alive, and next year I would not have held him at all. Although William lived for 382 days, he did not live one full calendar year.

Not only does today represent the end of a very hard and very painful year, today marks 382 days without my baby. William has been gone the same number of days today as we were blessed with him. How does that seem possible? The most exhilarating and amazing 382 days, compared to the most harrowing 382 days. I simply cannot make sense of it, I still cannot understand, accept or seemingly learn to live with it. I’m happy with that, right now, I don’t want to. Why should I? Losing William has enriched my life with the ability to see past what most people understand as a ‘good life’. To really understand the depth of love is to lose it, not until after you lose it do you realise how much you relied upon that love. How much you needed that love. How much you needed that person.

Earlier, I sat and thought to myself, ‘you’re not even 30 and you’ve outlived your child’. I sat in William’s room and looked at his tiny little clothes, thinking how small they would look next to him now had he been here. His room should not be tidy, it should be cluttered with his toys. His cot should be a bed. His changing mat replaced with a potty. Our home is stuck in a particular time. A time that stood still the moment William took his last breath. Will that change? I don’t know, not yet, I don’t want it to. William’s high chair is still in the kitchen, his cups and beakers are still in the cupboard, his cereals still stand on his shelf along with his other food bits. Well past their sell by date, but somehow to get rid of these would be like somehow getting rid of a piece of William. I am not ready for that separation yet. William’s pram is by the front door, the stones in the wheels from the last time it was used. His little coat still hangs on its peg and his toys still have pride of place in the front room. His car seat still adorns the back seat; every time I look in the rear view mirror I see it and it makes me smile. Imagining catching his eye as I drove along, his little face would burst into the biggest smile, babbling away, deep in conversation with himself after nursery. The replacement beaker still stands on my bedside table from the night he died, in case he needed another. The beaker that he last drank from in his cot is where he left it, the last thing he ever touched. I sometimes pick it up and place my fingers round the handles, knowing his chubby little fingers gripped this very handle. Knowing that his touch was once here. I still haven’t washed his handprints from the inside of my bedroom window. An ever lasting reminder that ‘William was here’. His toys are still in the bath and his toothbrush and toothpaste still in their little pot. For us, nothing has changed, our life hasn’t moved on, our life at a standstill, forever waiting, but I know we’ll be waiting a lifetime, William’s sweet giggle won’t ever resonate through our house again, his cheeky grin won’t fill my rear view mirror and his little fingers won’t ever hold that beaker again.

Some might say that we struggle to move on because we keep those things in their places, but that is not true, William was and still is a part of this household and this family. I need William’s things around me, to look at, to touch and hold, sometimes I remember a different memory and it makes me smile. Time does not heal, whoever said that was so very wrong, time may give you the ability to live a different life but it does not heal the gaping chasm that William has left. The scar tissue has not begun to form. I have no protection from falling in that pit. As time passes my flashbacks and PTSD seem to be increasingly more and more crippling. I don’t need triggers, those thoughts, visions and memories are right there, right in the forefront of my mind. This is what grief really does to you. There is no let up. It does not discriminate. It holds you firmly in its grip. Am I depressed? Yes, clinically so. Do I take medication to help me sleep, to stave away the crippling symptoms of anxiety, to help lift my mood, to help discourage suicidal ideation? Yes. Do I have a drink? Yes, just like you I have shit days, sometimes things go wrong, normal things, like the washing machine that William decided he needed in heaven on Christmas Eve. Do I struggle to get out of bed? Yes. Do I struggle to concentrate? Yes. Do I struggle to remember things? Yes. Do I struggle to go out, to be motivated? Yes. Do I care? No. I am simply a machine. I plug myself in at the end of the day, I recharge and get up and do my jobs the next day. Do I do them with conviction? No. Do I do them with care? No. Do I do them because I want to? No. Do I do them with hope? No. Am I worried? No. This is life. This is the card that I have been dealt, but goodness me, I’m in better shape than William is. His little life snuffed out because people did not do what they were supposed to do.

This year I have been well and truly submerged against my will into everyone’s worst nightmare. The terror that runs through my veins, the fear that makes my heart beat, very few people have experienced and I’m thankful for that. My eyes have been opened to a world of mental health that I only knew existed in the media. Don’t walk around with your eyes closed, make eye contact with people on the bus, the tube or walking down the street. If someone drops something, help them to pick it up. If someone elderly say hi, say hello back. Take the time to love, because you don’t know however small these little gestures are to you, to someone else they will be the highlight of their day or week. For someone else you can bring joy and comfort. Not just family and friends but strangers. Life is too short, I know this, you know this, please don’t walk around with your head down, rushing everywhere. Don’t sit on the bus on your phone, say hi. Give that homeless person a sandwich and a hot drink. Pick up the phone to your elderly relatives whom you rarely speak to, they won’t be there forever, they helped create the world that you live in today. You are their inspiration, be someone else’s. Most importantly. Look at your child and know, really know that you are their world. So make sure they know that they are yours.

My life is run on passion and love and drive and determination, my life is run simply on my resounding, unwavering love for William. He is my guiding light. He is my hope. He is what drives me, knowing I must get the answers, knowing I must fight for him, knowing that I will never settle for anything less than the truth. My life is not run on hope for the future, nor happiness but a bittersweet necessity to share my son with the world.

To be blessed with William, was to be blessed with love. My life furnished with everything it could ever possibly need and more. I cannot even begin to put in to words the sheer desperation I have to be with my son. The only hope I have is that is not too far away, hard I know, but the truth. But for now, my only wish for 2016 is that everyone will learn what really happened to William and what should have happened and in doing so educate themselves about sepsis and hope that those that made mistakes never make them again.

For now, I say goodbye to the last year that I ever held my child. Something I don’t want to do, but of course, no one can stop time. If they could I would have stopped it a long time ago. My wish for all of you in 2016 is that it brings you as much comfort as you have all brought me in 2015. That it brings you time with your loved ones that cannot be replaced. Love, learn and be inspired. William is my inspiration. My life and my love.


www.justgiving.com/williamoscarmead

 

One Year Without You

I loved you like there was no tomorrow…
and then one day, there wasn’t.

At 6.43pm on the 13th December 2014, I held you alive for the last time. The very last time that I cradled you alive, the last time I felt the weight of you in my arms. I didn’t know that would be the last time you would hear my voice, I didn’t know those would be the last words that I would ever speak to you; “Goodnight sweetheart, I love you.” I didn’t know that would be forever.

I remember making two promises to you when I held you on my chest for the first time, a bundle of arms and legs and warmth. I remember cupping your tiny little head with my hand, a head covered in the most beautiful dark hair, I remember so well, being scared to touch perfection, a euphoric experience that I can close my eyes and imagine, I remember thinking to myself, wow, after what has been a tumultuous life, I had struck gold. I knew from that moment, it was you, it was you that I had always wanted, it was you that I had always needed, it was you that through the hardest of times I held out for. My prayers had been answered. In that instant, in that moment, that moment of total peace, it was a strange feeling, a love so fierce it burned inside my chest, I promised you in that moment that I would love you with everything I had, that I could ever give, I knew that you were the key to my soul. So I made you that promise. Through the tears, the first words you ever heard your mummy speak, I promised you that I would love you with every ounce of my being, I would give you my heart, my body and my soul. I knew that you were the essence to what made my life meaningful and full of purpose.

The second promise that I made you came from my fear, my fear of being separated from you. After having extensive surgery I knew that in any moment, mummy could be taken away from you. Never having been in good health, having nearly died twice I knew that life was so fragile. The second promise that I made you was to make sure that the last time I saw you, whether that be when I tucked you up at night, when I dropped you off at nursery or when you were older and were off to play football with your friends, would be to tell you that “I love you”. I wanted to know that in case anything ever happened to your mummy that they would always be the last words that I would ever say to you. It wasn’t supposed to be the other way round, it was never supposed to be you. Shortly before you made your ascent to Heaven they found another tumour on mummy’s ovary. After seven surgeries and the tumour’s I have endured, I had never been scared, never had any fear of dying, in that moment, when they found that tumour, I cried, I cried so hard, I collapsed in a heap on the floor, begging daddy to tell me it wasn’t real, the fear that I would be taken away from you, why now? why me? why us? Hadn’t I gone through enough. Life now was perfect.

Then a few days later I whispered those words, what were to be those final words “Goodnight sweetheart, I love you.” I didn’t know that it would be forever. I kept my promises, I still keep my promises. I still love you with everything I have to give, and I still kiss your little bear goodnight and blow a kiss to the stars and say “Goodnight sweetheart, I love you.”

 

On the morning of December 14th 2014 I climbed out of bed and made my way into your room, I opened the door, I didn’t have my glasses on, the blackout blinds not letting any light in, I crept round to the side of your cot and I stoked your cheek. A chubby little cheek, warm to my touch, but you did not stir. I knelt down, put my arm through the bars of your cot, I stroked your arm, it was cool, I didn’t think too much of that, you slept in a sleeping bag with your arms out, and because you’d been poorly you had a vest on rather than a onesie. Still you didn’t stir. I stood, I stroked your side, you were stiff, your whole body moved with the motion of my hand, I turned, opened the curtains and blind and then I saw you. Your eyes cutting straight through me, I will never forget that moment, those words, “he’s dead, Paul he’s not breathing, Paul”. I ran to get the phone, I called the ambulance, daddy lifted you out of your cot and placed you on the floor, you were gone, we knew, your little arms and legs not moving. As I screamed down the phone, the operator calmly talked us through CPR, with every compression, I begged, I screamed, as I tilted your head back, I saw your chest rise and fall with every breath I gave you. You didn’t wake. You didn’t move. The paramedics arrived, they tried in vain, the chest compression’s they administered were so hard on your little body, I wailed at the shoulder of the paramedic as his hands scooped your body in his grip, desperately trying to pump life back into you. And then, those words, the most crippling words that any parent will ever hear, “I’m sorry my love, but he’s gone.”

As I fell backwards another paramedic caught me, they tried to take me out of the room, the breath like yours, gone from my body, I could not stand, I could not breathe, I could see you. You were gone. 8:47am you were pronounced ‘dead’. On the vast amounts of paperwork, there are no terms that are less cutting, ‘deceased’, ‘dead’, ‘no signs of life’, and the worst, ‘life extinct’. Life extinct. Your life was ‘extinct’. Two words that were spoken to your grandparents that shattered their dreams and their lives, “William’s dead”. There were no other words in that phone call. There were no other words needed, no other words could be spoken, nanny and grandad could hear your mummy wailing in the background, so did the street we live on. The ambulances blocking the road, the front door open, mummy’s wailing pierced the ears of those wondering what was going on. It was only when I walked outside with your fragile and broken little body in my arms, that people knew. Their faces on mummy’s, their heads bowed down. Your beautiful, lifeless little body spoke a thousand words. Mummy was broken. I could write a thousand words for every minute of that day.

That day I took the longest walk of my life, in reality it probably took several minutes, but to me it was a lifetime. As our family were escorted from resus, through the hospital, it had to be me that carried you, my face not leaving yours, it was me that handed you to the mortician, “please, look after him I said. I could not turn and walk away, it had to be him, this strange man, cradling my baby, taking you somewhere unfamiliar. He turned, and through those doors you were gone. “No, no, no, no, please no”. Never was a word spoken with so much power, one word spoken by mummy, a mummy who had just lost the most precious cargo she would ever carry. A word delivered with conviction, a word that encapsulated all of the pain and love I would ever feel. Please. Please give me my baby back, please don’t let this be real, please, God no, please, please baby wake up. Please.

It wasn’t time to say goodbye, it wasn’t time to let you go, I never will let you go. It has been one whole year since my world was shattered. I sit here today, reliving every moment that we lived this very day last year. There were and still are so many goodbyes. It wasn’t just that moment that I knew you were gone, it was being told, it was having to walk out the room whilst they examined you, it was handing you over to a stranger. The goodbyes are not just those first days but the milestones that you would pass that we’ll never reach with you. Your first plaster, the first time you would have said “mummy, I love you”, your first day at school, you first nativity, for me these aren’t first’s instead they are goodbye’s. A future that was robbed from you and from mummy and daddy. We regularly have to say goodbye to the dreams we had.

I miss you baby, I don’t know how to live without you, I don’t know what to do. I function but every step, every word spoken, every little job I do, is done without heart, is done simply because I have to. Life has lost its sparkle, the sparkle that you bought. I no longer trip over toys, I no longer worry about whether there is a hot cup of coffee within your reach, I no longer have to change after you’ve been sick on me, I no longer sleep through the night, I no longer have control over my mind or my thoughts, I no longer get that feeling of euphoria over one little smile, I never get to look in your eyes and cry with admiration, I no longer get to hold you, my sleeping baby, simply because I don’t want to put your down. I never knew that something so small, and so perfect could affect my life as it has, I never knew that I could possibly love someone so much, I never realised how much I would love being ‘mummy’. I never knew what it would feel like to have my heart-broken into irretrievably small pieces, I never knew how much I could hurt. I never knew what it would feel like to live with my heart outside of my body. You have my heart sweetheart, and with you it will always remain.

Loving you is easy, the best and biggest impact anything has ever had on my life. Missing you is inextricably hard. My heart breaks and will keep breaking until I hold you in my arms again, our souls are tied forever, an unconditional love that remains unbroken and more powerful than death. I love you my sweet William.


 

I would like you to think about what the last words spoken to your child/ren were before bed, before they went out to school, before they went back home to their own family, or hung up after calling you. Don’t take life for granted. Make those words “I love you”. Please.


 

www.justgiving.com/williamoscarmead

William’s Birthday Fundraiser

So, William’s birthday.

I’m going to write this blog purely about you, and how you have all helped us as a family to raise nearly £10,000 for the UK Sepsis Trust for William’s birthday.

The final figure hasn’t been totalled up yet, as we still have donations coming in and payments made for auction lots that were won. But as a rough breakdown, we raised over £3,500 via William’s Just Giving page (including giftaid), for those who couldn’t attend and bought balloons and raffle tickets. The online auction raised over £950, the auction at the event raised £400. Donations on the day for raffle tickets, balloons and donations exceeded £1,000. Worldwide Financial Planning (where I work) have agreed to match fund £1,000 and we are currently waiting for Santander Bank to match fund, the amount has yet to be confirmed. A cake sale at Standard Life raised over £400 with Standard Life matching the amount raised. There was a balloon release held in Spain where my family live, this raised over €300.

There are some events still taking place, these funds will be added to William’s Just Giving page. With a target of £10,000 I think with future fund-raising we might consider a new target!!

There are so many people that we need to thank, those that donated raffle and auction prizes. Their time, their help and most of all the support. Not just from family and friends but the wider community, including all around the world. There have been balloons sent to heaven for William from the States, South Africa, all across Europe including the UK, Australia, New Zealand, and Hong Kong. I am absolutely certain that William caught every single one.

Given the awful weather conditions, lots of people turned up to help us celebrate William’s birthday, it was extremely windy and rainy, typical UK style, but nevertheless, people put their wellies, hats, gloves and coats on and mucked in to help the family through what was an extremely emotionally charged day. At one point half of the balloons blew away, when a gust of wind was determined to steal our gazebo. But that didn’t spoil anything, we blew the reserve balloons up and let them go instead. As Paul, helped by all the children, let the balloons go from a big net, the Sun broke through the clouds, a perfect, tranquil and beautiful moment, I’m sure William knew. Our little two-year old was watching over us.
I would also like to say a very special thank you to a lady in Canada (I haven’t been specific with location from where they were set free to allow the students anonymity). Lydia along with her students raised and set free beautiful Monarch butterflies in William’s honor. They did this a couple of months ago, however, I thought it would be lovely to include these photos with William’s balloons. These elegant butterflies, one male and one female are currently making their way to Mexico.  Their wonderful teacher explained about William and his story and when they set the butterflies free, they all said a prayer for our little boy.

We are fast approaching one whole year without William, but that is an entirely different blog altogether. I want to sincerely thank everyone who has supported us, and restored our faith in humanity. I will shortly be putting up a gallery on my blog of all the photo’s we have received, so if you have any, please send them to me. If you are able to help us reach our £10,000 target, you can by visiting William’s Just Giving page by clicking this link I’m sorry that I might not have thanked everyone personally but we love you all xxxx

Happy Birthday Baby

William baby, I miss you, I miss you so much. I wish so much that you were here, or I was there. I don’t like this, I hate this, I can’t get used to this at all. I need you so much, I need you to be here, I need to see you, I need to hold you, I need to breathe in your beautiful smell and run my fingers through your soft hair. I need to know that you are ok. I need you, my baby, here with me.

When you arrived two years ago today on my birthday, I was overcome with an emotion I had not experienced in such an empowering form as this. I loved you fiercely from the moment I knew you were coming, but when I first saw you, when I first felt your tiny weight, your warm skin on my chest. I was in love. I knew then, that I would need nothing more in my life, it was you, it was always you. I couldn’t stop looking at you, waiting for you to open those mesmerising brown eyes, to drink in your soul. You loved with your eyes from the moment they were opened. Your eyes, the key to your beautiful soul is what I miss so much. I look at your photos and I just look into your eyes, hoping, wishing, wanting to jump right into that photo. Knowing so much that those little eyes won’t talk to me again, knowing that those little eyes won’t love me like they did. Although as your mummy no-one can get closer to you than I am but it is an infinite chasm that is between us. Un-natural, relentless and peppered with hardships that neither you nor I should have to endure.

Our first cuddle xx

Our first cuddle xx

I’m sitting here looking at a photo of you lying on my bed 3 days after you were born. I can remember lying there with you, I remember tracing my fingertip round the edges of your ears, learning their shape, getting to know every millimetre of your perfect little body. I remember gently walking my finger up the inside of your tiny little fingers, knowing your senses were heightened now you were no longer being incubated in mummy’s belly. I could see you taking it all in, stretching your perfectly formed little fingers out so that our fingertips could touch. Both of us tingling with new sensations, I was learning what your touch felt like, storing those moments in my memory for me to recall, I am glad I did that. I remember so clearly the folds of your skin, I remember the indentations your finger prints made, I can draw in my mind the lovely wrinkles that made you brand new. I remember oh so well. If I close my eyes, I can touch you. I know what your touch feels like. It gives me goose bumps and sends shivers down my spine. You were mine and I loved every bit of you.

Our first birthday cuddle xx

Our first birthday cuddle xx

I remember holding you, almost comatose on milk but not quite, still hanging on, that lingering look between us, I would slowly rub your forehead just at the top of your nose, until I would stop and my finger would come to a standstill, my finger with its tiny pressure resting on your forehead, you would succumb to your milky way. I wouldn’t move my finger, wanting so much to be part of your dream, my connection with you whilst you were sleeping. I wouldn’t move until you woke. The first person you saw when you opened those sleepy eyes. How many times did you wake to see the tears streaming down mummy’s face? You knew they were happy tears, tears when mummy was overcome with emotion, never quite knowing how to cope with the love that eclipsed us.

Today as I navigate through our birthdays without you I seek desperately to find some comfort knowing that you are safely tucked up in Heaven, but it’s not right and it’s not the same. This evening I will look up to the stars knowing that you are not just one but all of them, you’re beautiful soul shining through. I’m sorry I couldn’t get to you today. I’m sorry I can’t hold you, I’m sorry that I can’t cuddle you and smother you in a million kisses. I’m just so, so sorry. Sorry I couldn’t protect you, sorry I couldn’t make you better, sorry I wasn’t holding you when you took your last sweet breath. I’m just sorry it was you and not me. I would give my life for you to have yours. I would give my life so you could take one more breath, live one last moment, cuddle you one more time. I miss you sweetheart, I’m totally lost without you my precious little boy.

Today you are turning two, and I wonder what you are doing in Heaven. I hope there are lots of toys, and you are having lots of fun, I hope you miss mummy, because mummy misses you. I hope that the birthday you are having is a happy one. I ache to hear those little words, it’s my birthday mummy, it’s your birthday mummy. I ache to hear that little word uttered by you, mummy.

Happy birthday sweetheart, I love you xxxxx

You’re one of Heaven’s angels now,
A perfect little star.
And when you shine the world can see,
How beautiful you are.

May you fly with magic wings,
On clouds so soft and white.
May your heart be joyful,
And your days be bathed in light.

And though our hearts are broken,
And your life was far too short.
We thank you, sweetest angel,
For the happiness you bought.


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