PTSD and me

Today as I stepped out of bed on day 550 without you I looked out of the window for some inspiration. I didn’t find any.

There is no one day easier than another, I am yet to wake up any morning and think, well I don’t miss you as much today. My thoughts are always with you. My tears are all for you. I suspect you can see mummy from the little white fluffy cloud on which you now reside; but I know if you can see your mummy you’ll also know that she can’t help it. I have long since given up thinking that time heals, that one day I’ll come to terms with losing you. Simply, I won’t, how can I?

More than ever I can’t cope with knowing that I couldn’t save you. You didn’t deserve this. You deserved the world. You deserved to be happy. You deserved the chance to live your life how you chose. Your life so cruelly taken away from you by others. Maybe that day they went into work with something on their mind, perhaps they were tired. But you gave your life for their mistakes, there is no bigger sacrifice, and if mummy could she would give everything for you to have breath back in your broken little body.

Sweetheart, I think that some people think that after 550 days I should be functioning better, that I should be capable of getting through a day without breaking down. Or that perhaps I shouldn’t be as vulnerable and fragile as I am. I don’t think anyone will ever understand the path that I tread. It is not a path that anyone else can say they have been on, after all, only I know my pain of losing you. Daddy treads his own path, others tread different paths. But no one treads mummy’s path.

The moment that mummy heard those words ‘I’m sorry my love, but he’s gone’ my life changed irrevocably. There was no going back, no going back to the normal life we had created together. No more cosy morning snuggles, no watching you point your toes and jiggle your little feet when you are excited, no sneaking into your room in the night to stroke your silky soft hair. Mummy used to do that, you probably knew that, but you let me, because you know mummy needed to. What I would do to just hold you one more time.

Some people don’t understand that by the time I have managed to dress myself in the morning, I have already been awake crying for several hours, if I’ve been to sleep at all. Some people don’t understand that some days fast movement, lots of noise or colour gives me a sensory overload. Trying to explain to someone why I’m so hypersensitive is virtually impossible, let alone trying to explain how the flashbacks cripple me. You see people don’t understand PTSD, people think I should stop thinking about it. How can I? Could they? I don’t think so, not if they had witnessed losing you. I can’t stop thinking about it, I don’t have a choice. PTSD isn’t simply a memory recollection, something you can summon and then change to think about something completely different. When my brain decides, I will re-live the moment that I found you again. Frozen in bed, not being able to move, paralysed by fear, in my mind, you are next door, in your cot, passed away. Somehow the light, the sounds, the smells are the same. It is that morning again. I can’t remember how many hours I sat cross-legged on your floor, hands tightly gripping the bars of your cot, head pressed against the bars so hard there were two lines on my forehead, staring, my eyes pleading with the spot where you took your last breath, pleading for you to not be there, not like that, not again. I think it took 6 hours for my brain to realise that you weren’t there. For those 6 hours in my mind I had been staring at your broken little body. But of course you weren’t there. Try telling my mind that. It is like being trapped in a nightmare, not able to wake up because of course you are already awake. Being suffocated by the nightmare as you have no idea that it isn’t real or that it isn’t really happening again.

PTSD is so debilitating. I don’t get a choice, I can’t just not think about ‘it’. The trauma of losing you so vivid, mummy is forced to re-live losing you all over again, I can’t help it. It’s not just a memory, it’s not something that I can distract myself from. It is not something that I can explain to people unless of course they have experienced it. They do not understand that one minute you are seemingly ok and confident to the next minute being scared to exist in what is a co-dependent bubble. And when it strikes it is like having a wound re-opened, and left constantly open. Social situations are a no go area, draining, emotionally exhausting, overwhelming, frozen and incapable of functioning. In a nutshell PTSD is not being able to differentiate in your mind the past, the present and the future.

I wish people would be patient, I wish people would not judge. I wish I didn’t have to keep justifying how and why I feel like I’m in a sinking abyss. No one will ever understand the pain of losing you, a life sentence, one that will not be over until I take my last breath and we are together again.

You will never know sweetheart how much mummy needs you. You changed my life, mummy is so blessed that you picked me. I sit here looking at your photo’s, your captivating smile, your sparkling eyes coming alive from every photo. You probably see mummy touch your photos, hoping that she can feel you chubby soft skin once more; but I never will. I remember the last time I ever held you. I traced every inch of your little body with my finger, my eyes closed, assigning every little fold and crease to memory. Even then, twenty days after you had passed away you were still perfect. God, mummy misses you so much. People just don’t get it. It just does not get easier.

So, my message to the lovely people who I encounter every day in my life, please don’t judge, don’t criticise, be patient, be calm, be respectful and most of all, give me time. I estimate it will take a lifetime.


www.justgiving.com/williamoscarmead

Dearest William…

I hope you are ok? Mummy is missing you so much. Mummy is finding it so hard at the moment, it’s so hard to live without you. It has been 15 short months since you went to live in your new home. 15 months is longer than you lived for. 15 months isn’t very long in the context of a lifetime, well not mine at least. 15 months is long enough, what is 15 years going to feel like, or 50. I hope by then I’m with you. I hate this sweetheart I really do. I can’t remember the last time I was happy. The last time I really laughed so hard. I can’t remember the last time that I didn’t have a care in the world.

Losing you is the hardest fight that I will ever have to face, and it is a fight. The constant urge of wanting and needing to give in is prevalent. I am but one breath from being with you, but that feels like a lifetime away, well it is a lifetime. It is probably a good job that we don’t have on/off switches. I would have flicked that switch a long time ago, to end this part of my life in purgatory, and to spend the rest of my time, with you. Only with you. Well not just with you, but the two other little children, who sadly, mummy didn’t get to give birth to. See, you were so special, the little one that made it. I was honoured to share my birthday with you. You couldn’t get a more perfect gift than you.

You changed my life, you changed me as a person, you see I don’t think people realise quite how much. Before you arrived I had resigned myself to a life with no children. Growing up I was fiercely independent, I knew my mind and where I wanted to be. I grew up very quickly and left my childhood behind. Nanny and grandad worked so much, every day in fact, so I spent a lot of time with your great nanny, and auntie Joyce. But I learnt how to look after myself, I worked hard as soon as I was old enough, I did well at school, but I always did my own thing. I was the only one who really exerted control over me. When I was told at 11 years old that it was unlikely I would have my own children, I planned around it, I never grew up playing with dolls or talking about children. Even nanny and grandad didn’t think I was maternal at all, throughout my pregnancy I worried I wouldn’t be good enough, I worried that I wouldn’t know what to do, and I worried that I wouldn’t be a good mum. I remember being in labour and I said to daddy “what happens if I don’t love him, what happens if he doesn’t love me?” Daddy assured me that would never happen. Daddy was right (don’t tell him I said that), for once I have no problem standing on the tallest building and shouting, your daddy was right. My goodness I have never loved anyone or anything as much as I love you, and you loved me.

I knew how special you were, I knew then. I know now. I will always know. You were the one that allowed me to lessen the grip I held on myself, you allowed me to live with more freedom, allowing myself breathing space. You taught me there was more to life than working 24/7, you taught me that it didn’t matter if filing wasn’t done the moment the bills came through the door, you taught me that it didn’t matter if the washing didn’t get done, if the dinner wasn’t on the table at 6. I had spent the day encapsulated in our bubble of love. That is the power of love. A total force of nature. You taught me to be selfless, to be patient, to be compassionate, to love with no expectations. You taught me how to live. I owe my life to you. I owe everything to you. I gave you everything I have.

Being separated from you has ignited sheer desperation, a yearning and need that I cannot fulfill, manifesting itself as pain. The price I will pay for the rest of my life for loving you so much. That pain will only increase as the love intensifies and the ache in my arms becomes heavier. At the moment I’m not living peacefully, you probably know. You can probably see my struggle. The tears, the sleepless nights, the nightmares, flashbacks and hallucinations. You probably know that I’m not working. The visions of your broken little body now not just thoughts but tricks of my mind. I don’t like it. I can’t help it, your broken little body can appear on the windowsill as I’m sat in the office working, reflections in the mirror as I look at myself, or like the other night, I woke screaming, sweating, having had your little hand drop on mine, but not your plump, dimpled little hand that I used to hold but your stiff, cold hand, the entirely different hand that I saw after you had died. Why do I experience this, I don’t know. As much as I have experienced your waking moments, I also experienced your dying ones too. I experienced your death, and as much as your little life made the biggest impact on my life, your death did to. Your life happened, but so did your death.

What am I supposed to do without you? How am I supposed to live without you? All I want to do is come home, but I am ‘home’ but I’m not, my home is with you. We should have been making memories today, you would have been making me a card at nursery, you should have been here to see me open it, and help me eat my breakfast in bed that you and daddy made. We should have gone out and filled our day with more of those infectious smiles and laughed until our cheeks hurt, making memories. I should have heard you say ‘mummy I love you’ I should have been able to say, thank you sweetheart, I love you too. But I can’t, instead I’m sat in bed looking out of the window. I can see white smoke from the chimney across the road, make its way into the dark dusky sky, wishing I was a free spirit like the smoke, making its way into the atmosphere. I just want to be free again, but until we are together again, I know I never will be. I live everyday with the guilt, guilt that I couldn’t protect you, that somehow I didn’t do enough to save you. I hope you don’t blame mummy as much as she blames herself. The thought of letting you down, leaves me barely able to live with myself, but Daddy is doing his best to look after mummy’s broken soul.

William you allowed me to see life through different eyes, you allowed me to open my eyes and experience LIFE. William, you gave me love, a love that I didn’t know existed, you gave me love that was beyond my imagination. William, you made me a mummy, you made me your mummy, thank you. Thank you for picking me. It will always be you.

As another day draws to a close without you, another mother’s day without you, one more day closer to you. I look up to the night sky and like every other evening I say to you, goodnight sweetheart, I love you. Your mummy xxx


www.justgiving.com/williamoscarmead

 

 

 

You were only one, but….

…Your smile was the most captivating I have ever seen.
…Your smile made me smile.
…Your eyes came alive when you smiled.
…Your eyes were full of love and trust.
…Your eyes emanated the true depth of beauty.
…Your eyes made mummy’s eyes leak.
…Your little face made mummy’s heart burst under the pressure of love.
…Your presence allowed mummy to feel entirely at ease with the world.
…Mummy is entirely in love with you.
…Giving birth to you defined me.
…When you arrived my soul was purged of any hurt.
…You fixed me and were the glue that held mummy together.
…When I cuddled you, you made everything ok.
…You gave me moments I wanted to freeze in time.
…You gave me ten little fingers and ten little toes that mummy could count.
…You gave mummy a cute button nose that she could ‘beep, beep’.
…You allowed me to sit up to the wee hours and watch you sleep.
…You were that little baby my arms had longed to cradle.
…You always kept your hat and gloves on like a good boy.
…You had already decided you didn’t like broccoli.
…You knew how to be perfectly cheeky.
…You allowed mummy to act silly.
…You were the little person I could make up silly nicknames for.
…I have never giggled so much as when we were together.
…You had mummy wrapped around you chubby little finger.
…Being wrapped round your chubby little finger was the best place to be.
…We had our very own family meal (with no broccoli).
…When you learnt something new, mummy would feel nothing but accomplishment.
…You taught me how to be patient.
…You taught me that the little things are the things that matter.
…You taught mummy not to be selfish.
…You made mummy realise that she is a good mummy.
…You gave mummy the best job.
…You taught me what it is to love unconditionally.
…You showed me what pure and unguarded love is.
…You taught me a kind of love that has no boundaries, that is limitless and endless.
…Mummy knew she would never be alone.
…Mummy has never worried about anything as much as she worried about you.
…You are the beat in my heart and the pulse in my veins.
…Losing you has given me courage that I never thought I had.
…Your life and your existence taught me endurance to continue.
…Losing you has made mummy feel agonising pain and heartache.
…Losing you has made mummy very forgiving and compassionate of others.
…Losing you changed me.
…Losing you has destroyed me.
…You are the reason I love and the reason I’d die.

When mummy looked at YOU she knew that she had got one thing absolutely perfect.

Your death sparked feelings I never knew existed;
and I want YOU; not feelings about you.


www.justgiving.com/williamoscarmead

The most Harrowing and Ultimate Goodbye

“The days will always be brighter,
because you existed.
The nights will always be darker,
because you are gone.”

This time last year was the worst journey I made of my life, the journey to visit you for the last time, knowing it really was the very last time. Knowing that later that day your forever bed would be sealed, never to be opened again. As your family arrived to see you, I carefully lifted your fragile and broken little body from your bed and cradled you, rocking you backwards and forwards, treasuring what would be my last few moments with you. All eyes were on you, waiting for God to undo it, all watching you, waiting, waiting for a miracle. That miracle never arrived. So as your family kissed your tiny beautiful fluffy hair for the last time, their tears like a leaking faucet landing on your skin, they said goodbye, goodbye William. Then it was just mummy and daddy. Mummy stood holding you, the need to rock you to sleep long gone, but mummy did it anyway, still instinct, those rocking motions part of mummy’s being, part of what mummy is for, to soothe you, to comfort you, to make it better. But, mummy could no longer make this better, the primal screams from mummy’s body gone from the day you left, replaced only by muted sounds. Daddy pulled us in to a big daddy bear hug, his arms wrapped around mummy, you our baby tucked safely between us, for the last time, for the last time ever, we stood as a unit, as a family, for the last time ever we stood there completely whole, we were one. We were us, we were three. We cried for you, we cried for us, we cried over you, haunted forever by this defining moment. Daddy loosened his grip, he placed his hand on your head, left a lingering kiss on your forehead and he told you that he loved you pickle. Then he left.

It was just me and you. Me and my baby, my baby and I, William and Melissa, mother and son. Just us. I returned to the seat, I drank you in, after nearly four weeks, your beautiful pink plump skin was starting to give in to nature, a purplish, grey hue, but you were beautiful, your long dark eyelashes extending from eyes that mummy would never see again. Mummy traced her finger down your perfect button nose, taking in the contours of your lips, little lips that hid your first teeth. The glitter in your ear catching the light, mummy had asked the pathologist not to wash you, you needed to still be you, still needed to have that silky soft hair, and you still needed to have glitter in your ear from the little Christmas tree that you made mummy and daddy two days before you went to Heaven. As I sat there, holding you, my mind could not accept that you would not wake up. You were so peaceful, I expected you to scrunch your little face up any moment, kissing goodbye to milky floating dreams and coming back to reality, but it didn’t happen, you remained still, you remained silent, mummy remained broken, just like you.

I hadn’t really thought about what I would say to you that day. I just begged, I begged and pleaded with you to wake up. “Please sweetheart, please wake up, mummy’s here. Mummy loves you so much, please little man, please.” But you didn’t, my chest heaving with every breath, my heart aching with every beat, the pain palpable. “I’m so sorry sweetheart, I’m so sorry that I couldn’t protect you, that I couldn’t save you, I’m so sorry that it’s you and not me, sweetheart I love you so much, I love you, please, baby.” But no matter what I said you didn’t move, there was no sharp intake of breath where you woke me up from this wretched nightmare. I had to say goodbye, I had to put you down for the last time. I knew my time was limited, your funeral approaching, I knew that at some point it would be the last time I touched your foot, stroked your cheek, ran my fingers through your hair, held you and kissed you. I knew that in a matter of moments I would see you for the last time, ever. I wanted to open the door and run away, run down the country lane with the wind in our hair, I wanted to keep on running and never stop, to never be apart from you, for them not to take you from me, but I couldn’t. So, with the heaviest heart, and the hardest footsteps I rose and made my way over to your coffin, but I couldn’t do it, under the weight of the world I sunk to the floor and I could barely catch my breath as I tried to talk to you. My beautiful little miracle baby, the sweetest natured little boy, the most angelic and perfect little man this world would ever see was gone. I stroked your cheek one last time, I gently rubbed my thumbs over your eyes, I ran my fingers through your hair, I cupped your head in my hand and bought your head towards my face, as my lips met your forehead I kissed you, a mother’s fingerprint on her child’s skin. I squeezed you so tight and inhaled your sweet scent for one last time, and with the most agony I have ever felt I stood and I gently placed you in your forever bed. Never to hold you again.

Your legs naturally crossed, mummy placed a photo of mummy and daddy on your chest, your arms hugging it close. We were going with you wherever you went. You looked so peaceful in your beautiful satin white coffin, like you would wake at any moment, but I knew you wouldn’t. I just wanted to curl up in the coffin with you and die, our arms forever intertwined, our bond inextricably woven, untouchable. Just me and you. But I couldn’t. Your little coffin only 30 inches long. There was no room for mummy. I took one step back and just looked at you, this was never meant to be, a sight I could never have imagined I would ever witness. I came closer, I knew it was time, I had asked them to give me a time limit, knowing I would never leave you given the chance. I felt you chubby little foot in my palm, I allowed the shape of your legs to lead my hand up over your body, taking in your little legs, the little legs that had just taken their first steps, over your little belly, and down your arms to your hands. I placed your hand on mine, finger to finger, fingerprint to fingerprint, your little nails, perfectly formed, I placed your hand on my cheek one last time, I placed my hand on top of yours and felt your delicate touch against my face, if I close my eyes now, I can feel you, I can feel your touch and your tiny little fingers pressing on my cheek. I placed your hand over the photo and for one last time I leaned over and I placed my cheek on yours, I put my arm under your shoulder and I hugged you tight, my hand on your left cheek holding us together in unity, as one, as we had started out, our life as one, in one body, death had broken you, it had broken me but it would not break US. I removed my arm and I held your head in my hands, our noses touching, I kissed your lips, I kissed your cheeks and you little button nose, then I planted a kiss on your forehead. As I held your head to my lips, tears streaming down my face onto yours, I knew this was it. I had to let you sleep. I had to let you go. So, mummy made you comfortable, she straightened your hair out, tucked you in to your little blanket, “I’m so sorry baby, I’m just so so sorry, please don’t blame me. I love you, I love you so much, my boy, my everything, my life, I miss you, I’m just so sorry my darling boy. Goodnight sweet William, I love you, mummy loves you.” One gentle kiss on your head, the last kiss, I reached my hands up and I closed the heaviest object I would ever encounter, the lid to your coffin, I had to do it, it had to be me, I had to be the last one that would ever see you. The lid closed and I stepped back and I just stood and looked, I wept with every fiber of my being, knowing you were in there but I couldn’t see you, I would never see you again, I slowly stepped backwards out of the room, my eyes not leaving you, my hand found the light switch and with one movement the light was extinguished. I opened the door, still not taking my eyes away from you. I circled out of the door and stood for what felt like a lifetime, and slowly I closed the door, the door to my life. My family didn’t say anything to me, I didn’t say anything to them, I walked out. At that point I knew what giving up felt like, at that point I gave up. There would be no miracle, God would not be undoing this, you would not be waking up. Life had gone to far this time. I got in the back of the car, and I was driven away from you. Never to see you, touch you, feel you, smell you or kiss you ever again.

I sat in your bedroom when I could see the hearse creeping up the road, I could see your name in the most beautiful white flowers, I ran down the stairs and stood at the front door as I saw you being driven past, the hearse dwarfed your tiny little bed. I made my way down to the road and waited for the car to turn around and come back. Mummy had requested a car that mummy and daddy could sit in with you and take your last journey together. I climbed into the hearse and I pressed my hand on your bed, like somehow the harder I pressed I would somehow feel your baby-soft skin again. I did not take my hand off your bed the entire way. It was a slow journey, not too far, but far enough. After we arrived I could see people’s faces, your tiny coffin clearly making a devastating impact on everyone. Your flowers were removed, WILLIAM and GRUMPUS taken into the crematorium, followed by a pillow and a little reindeer, your favourite and two red roses from mummy and daddy. It was time. For the last time. I carried the heaviest thing a mother can ever carry down the longest aisle I have ever had to walk. It was time to say goodbye, but it wasn’t goodbye, not for me, for me it was “Goodnight sweetheart, I love you, see you soon.”

Your last journey xx Your last journey xx

www.justgiving.com/williamoscarmead

My inspiration for 2016 – William

My boy and I

My boy and I

As the evening draws in and darkness approaches, I say goodbye to 2015, but I do not welcome 2016. For I would not have cuddled my baby in 2016. This year I didn’t hold my baby alive, and next year I would not have held him at all. Although William lived for 382 days, he did not live one full calendar year.

Not only does today represent the end of a very hard and very painful year, today marks 382 days without my baby. William has been gone the same number of days today as we were blessed with him. How does that seem possible? The most exhilarating and amazing 382 days, compared to the most harrowing 382 days. I simply cannot make sense of it, I still cannot understand, accept or seemingly learn to live with it. I’m happy with that, right now, I don’t want to. Why should I? Losing William has enriched my life with the ability to see past what most people understand as a ‘good life’. To really understand the depth of love is to lose it, not until after you lose it do you realise how much you relied upon that love. How much you needed that love. How much you needed that person.

Earlier, I sat and thought to myself, ‘you’re not even 30 and you’ve outlived your child’. I sat in William’s room and looked at his tiny little clothes, thinking how small they would look next to him now had he been here. His room should not be tidy, it should be cluttered with his toys. His cot should be a bed. His changing mat replaced with a potty. Our home is stuck in a particular time. A time that stood still the moment William took his last breath. Will that change? I don’t know, not yet, I don’t want it to. William’s high chair is still in the kitchen, his cups and beakers are still in the cupboard, his cereals still stand on his shelf along with his other food bits. Well past their sell by date, but somehow to get rid of these would be like somehow getting rid of a piece of William. I am not ready for that separation yet. William’s pram is by the front door, the stones in the wheels from the last time it was used. His little coat still hangs on its peg and his toys still have pride of place in the front room. His car seat still adorns the back seat; every time I look in the rear view mirror I see it and it makes me smile. Imagining catching his eye as I drove along, his little face would burst into the biggest smile, babbling away, deep in conversation with himself after nursery. The replacement beaker still stands on my bedside table from the night he died, in case he needed another. The beaker that he last drank from in his cot is where he left it, the last thing he ever touched. I sometimes pick it up and place my fingers round the handles, knowing his chubby little fingers gripped this very handle. Knowing that his touch was once here. I still haven’t washed his handprints from the inside of my bedroom window. An ever lasting reminder that ‘William was here’. His toys are still in the bath and his toothbrush and toothpaste still in their little pot. For us, nothing has changed, our life hasn’t moved on, our life at a standstill, forever waiting, but I know we’ll be waiting a lifetime, William’s sweet giggle won’t ever resonate through our house again, his cheeky grin won’t fill my rear view mirror and his little fingers won’t ever hold that beaker again.

Some might say that we struggle to move on because we keep those things in their places, but that is not true, William was and still is a part of this household and this family. I need William’s things around me, to look at, to touch and hold, sometimes I remember a different memory and it makes me smile. Time does not heal, whoever said that was so very wrong, time may give you the ability to live a different life but it does not heal the gaping chasm that William has left. The scar tissue has not begun to form. I have no protection from falling in that pit. As time passes my flashbacks and PTSD seem to be increasingly more and more crippling. I don’t need triggers, those thoughts, visions and memories are right there, right in the forefront of my mind. This is what grief really does to you. There is no let up. It does not discriminate. It holds you firmly in its grip. Am I depressed? Yes, clinically so. Do I take medication to help me sleep, to stave away the crippling symptoms of anxiety, to help lift my mood, to help discourage suicidal ideation? Yes. Do I have a drink? Yes, just like you I have shit days, sometimes things go wrong, normal things, like the washing machine that William decided he needed in heaven on Christmas Eve. Do I struggle to get out of bed? Yes. Do I struggle to concentrate? Yes. Do I struggle to remember things? Yes. Do I struggle to go out, to be motivated? Yes. Do I care? No. I am simply a machine. I plug myself in at the end of the day, I recharge and get up and do my jobs the next day. Do I do them with conviction? No. Do I do them with care? No. Do I do them because I want to? No. Do I do them with hope? No. Am I worried? No. This is life. This is the card that I have been dealt, but goodness me, I’m in better shape than William is. His little life snuffed out because people did not do what they were supposed to do.

This year I have been well and truly submerged against my will into everyone’s worst nightmare. The terror that runs through my veins, the fear that makes my heart beat, very few people have experienced and I’m thankful for that. My eyes have been opened to a world of mental health that I only knew existed in the media. Don’t walk around with your eyes closed, make eye contact with people on the bus, the tube or walking down the street. If someone drops something, help them to pick it up. If someone elderly say hi, say hello back. Take the time to love, because you don’t know however small these little gestures are to you, to someone else they will be the highlight of their day or week. For someone else you can bring joy and comfort. Not just family and friends but strangers. Life is too short, I know this, you know this, please don’t walk around with your head down, rushing everywhere. Don’t sit on the bus on your phone, say hi. Give that homeless person a sandwich and a hot drink. Pick up the phone to your elderly relatives whom you rarely speak to, they won’t be there forever, they helped create the world that you live in today. You are their inspiration, be someone else’s. Most importantly. Look at your child and know, really know that you are their world. So make sure they know that they are yours.

My life is run on passion and love and drive and determination, my life is run simply on my resounding, unwavering love for William. He is my guiding light. He is my hope. He is what drives me, knowing I must get the answers, knowing I must fight for him, knowing that I will never settle for anything less than the truth. My life is not run on hope for the future, nor happiness but a bittersweet necessity to share my son with the world.

To be blessed with William, was to be blessed with love. My life furnished with everything it could ever possibly need and more. I cannot even begin to put in to words the sheer desperation I have to be with my son. The only hope I have is that is not too far away, hard I know, but the truth. But for now, my only wish for 2016 is that everyone will learn what really happened to William and what should have happened and in doing so educate themselves about sepsis and hope that those that made mistakes never make them again.

For now, I say goodbye to the last year that I ever held my child. Something I don’t want to do, but of course, no one can stop time. If they could I would have stopped it a long time ago. My wish for all of you in 2016 is that it brings you as much comfort as you have all brought me in 2015. That it brings you time with your loved ones that cannot be replaced. Love, learn and be inspired. William is my inspiration. My life and my love.


www.justgiving.com/williamoscarmead