Christmas and grief

Sitting on Santa's knee for the first time

Sitting on Santa’s knee for the first time

Today is a sad day, every day is a sad day, but this time last year we announced when William’s funeral would be. Instead of uploading hundreds of photos that all seemed to look identical, William covered in paper and sellotape, playing with the boxes that the toys came in, instead we were inviting people to his funeral.

Christmas, a time of year that over the centuries has evolved from its very religious beginnings, now a commercialised time of year, that we all use as an excuse to down tools and spend time with our loved ones. Who can blame you? No-one needs an excuse to see that joy on their little ones faces, that excitement of knowing Father Christmas is coming, writing a letter to Santa, leaving a mince-pie, carrot and a tipple for Santa on Christmas Eve, visiting any number of events laid on by local attractions for our children to sit on Santa’s knee, and finally that sound of tiny stomping feet and squeals of glee, when they discover Santa has been, a stocking brimming full of toys that will be played with once, a tree that is barely recognisable under the weight of all the gifts.

We had none of that. We will never have any of that. William didn’t get to learn about Father Christmas, William didn’t get to star in his first nativity, William didn’t get to write a letter to Santa, he did sit on Santa’s knee, his bear containing William’s ashes gripped tightly by Santa, but that isn’t what we imagined would be the first time William would sit on Santa’s knee. We didn’t get to track Santa’s sleigh as he visited those in the Far East before he made it to the UK, we didn’t get to buy him a personalised book from Santa. On Christmas morning we awoke to silence, no little feet stomping down the corridor, no squealing, no excited little face, no ‘mummy, daddy, he’s been’. No William.

Our floor was clear of wrapping paper, we didn’t have an obstacle course of toys littered around the house. We didn’t have a little boy to give his first brussel sprout too. We didn’t get to show him a cracker, he didn’t get to wear a party hat or a cute little outfit. We didn’t have the struggle to put him to bed, too high on the simplicity of playing with his toys. We didn’t get to pack him and 500 toys into the car to visit family and friends, where his beautiful smile would make anyone’s Christmas. No, we had nothing.

Instead we went away, we went to stay somewhere completely unfamiliar, needing to get away from the suffocation of William’s absence in our home. But, regardless of where we were, the crushing pain packed itself in our suitcase and followed us. My heart hurts, it physically hurts in my chest, it doesn’t go away when I breathe in or out, whether I lie down or stand up, whether I have a glass of wine or not. My chest is crushed, my heart aching, aching to hold my little boy on Christmas. Last Christmas William’s fragile and broken body was still with us. I held him for several hours twice on Christmas day. I cried over his beautiful presence, I held him so close, I feared I might squash him. This year, we didn’t even have that. There are very few that will understand this pain.

Paul and I stayed in a beautiful hideaway in Dartmoor National Park, there were families with children there, but we spoke to lots of couples who like us were ‘hiding’. Christmas not a happy time for them either. Some vastly wealthy couples, but grief does not discriminate, a loss of both parents recently meant one couple needed to be somewhere unfamiliar. At Christmas dinner, we had William’s teddy in a high chair, the chap on the next table ordered his parents favourite wine. Simple things, that somehow bring us closer to those loved ones we so desperately pine for. We met a U.S district judge, a man with a very powerful and influential position in society, reduced to tears by William’s story. For some Christmas isn’t a time of joy or craziness, it has become a time of painful reflection. A time that you look at your watch and hope that another hour has passed.

Every painful aspect a reminder of what should be, William would have loved the Christmas tress in every room, William would have loved splashing in the muddy puddles in his wellies, William would have loved the array of treats littered around the castle to keep the kids entertained, William would have loved afternoon tea, bitesize little sandwiches, perfect for his dinky little fingers, William would have loved to have found the stocking hanging on our door on Christmas morning, William would have loved to decorate the Christmas tree in our room, William would have loved the table magician, William would have loved the owl that sat on the reception desk, William would have loved watching the hunt as the horses and hounds made their way off the estate, William would have loved to sit in front of the grand fire by the most extravagant Christmas tree waiting for Father Christmas to call his name out to go and collect his present, William would have loved to watch the ferret racing, William would have loved the playbarn, William would have loved everything, but William was robbed of all of those things and we were robbed of William. All I wanted for Christmas was my son. Just one second, just one cuddle, just one stroke of those chubby little cheeks, just one look at that infectious smile, just one smell, just one touch. Just William. This is a wish that will never be answered.

I have felt nothing but guilt, my whole body consumed by Williams last few hours, what must my boy have been feeling, what did he want to say but couldn’t, what sort of mother am I to listen to what I was told to do, what sort of mother am I to listen to people who had no idea what they were doing, not just one person but multiple people, not just once but multiple times. The one thing I wanted to do and prided myself on was protecting my little boy, knowing that no-one could ever protect him and love him like I do. But sepsis does not discriminate, William was not unlucky, William was let down in the most unimaginable way possible. They have taken away our Christmas, our birthdays, every day, our life, our William. No manner of apology or putting right what went wrong will change anything, nothing will bring William back. Nothing can make Christmas bearable. Nothing can take away the fear, the anxiety and the guilt that any mother would feel for not somehow saving her child.

During midnight mass in the local church, William’s teddy wrapped in my embrace, I struggled to make it through the service, the tears came rolling down my cheeks, choking on the tears, the words the heart cannot speak. As I stood, I went to the vicar and I asked him to please pray with me. He held me and William, and he prayed that his little soul would be in peace and to bless his beautiful soul. He also prayed for me, William’s mummy, to find comfort. I am yet to find any. I know that day will come, I know that day will be when I get to join my son again. In a place where there are no hours, days or years, where it is eternity. Where there is peace from this suffering, where I know that I will never be separated from my darling little boy again. A place where the first thing I will do is find my son, and the second will be to never let him go again. On that day, and that day only I be happy.


 

www.justgiving.com/williamoscarmead

One Year Without You

I loved you like there was no tomorrow…
and then one day, there wasn’t.

At 6.43pm on the 13th December 2014, I held you alive for the last time. The very last time that I cradled you alive, the last time I felt the weight of you in my arms. I didn’t know that would be the last time you would hear my voice, I didn’t know those would be the last words that I would ever speak to you; “Goodnight sweetheart, I love you.” I didn’t know that would be forever.

I remember making two promises to you when I held you on my chest for the first time, a bundle of arms and legs and warmth. I remember cupping your tiny little head with my hand, a head covered in the most beautiful dark hair, I remember so well, being scared to touch perfection, a euphoric experience that I can close my eyes and imagine, I remember thinking to myself, wow, after what has been a tumultuous life, I had struck gold. I knew from that moment, it was you, it was you that I had always wanted, it was you that I had always needed, it was you that through the hardest of times I held out for. My prayers had been answered. In that instant, in that moment, that moment of total peace, it was a strange feeling, a love so fierce it burned inside my chest, I promised you in that moment that I would love you with everything I had, that I could ever give, I knew that you were the key to my soul. So I made you that promise. Through the tears, the first words you ever heard your mummy speak, I promised you that I would love you with every ounce of my being, I would give you my heart, my body and my soul. I knew that you were the essence to what made my life meaningful and full of purpose.

The second promise that I made you came from my fear, my fear of being separated from you. After having extensive surgery I knew that in any moment, mummy could be taken away from you. Never having been in good health, having nearly died twice I knew that life was so fragile. The second promise that I made you was to make sure that the last time I saw you, whether that be when I tucked you up at night, when I dropped you off at nursery or when you were older and were off to play football with your friends, would be to tell you that “I love you”. I wanted to know that in case anything ever happened to your mummy that they would always be the last words that I would ever say to you. It wasn’t supposed to be the other way round, it was never supposed to be you. Shortly before you made your ascent to Heaven they found another tumour on mummy’s ovary. After seven surgeries and the tumour’s I have endured, I had never been scared, never had any fear of dying, in that moment, when they found that tumour, I cried, I cried so hard, I collapsed in a heap on the floor, begging daddy to tell me it wasn’t real, the fear that I would be taken away from you, why now? why me? why us? Hadn’t I gone through enough. Life now was perfect.

Then a few days later I whispered those words, what were to be those final words “Goodnight sweetheart, I love you.” I didn’t know that it would be forever. I kept my promises, I still keep my promises. I still love you with everything I have to give, and I still kiss your little bear goodnight and blow a kiss to the stars and say “Goodnight sweetheart, I love you.”

 

On the morning of December 14th 2014 I climbed out of bed and made my way into your room, I opened the door, I didn’t have my glasses on, the blackout blinds not letting any light in, I crept round to the side of your cot and I stoked your cheek. A chubby little cheek, warm to my touch, but you did not stir. I knelt down, put my arm through the bars of your cot, I stroked your arm, it was cool, I didn’t think too much of that, you slept in a sleeping bag with your arms out, and because you’d been poorly you had a vest on rather than a onesie. Still you didn’t stir. I stood, I stroked your side, you were stiff, your whole body moved with the motion of my hand, I turned, opened the curtains and blind and then I saw you. Your eyes cutting straight through me, I will never forget that moment, those words, “he’s dead, Paul he’s not breathing, Paul”. I ran to get the phone, I called the ambulance, daddy lifted you out of your cot and placed you on the floor, you were gone, we knew, your little arms and legs not moving. As I screamed down the phone, the operator calmly talked us through CPR, with every compression, I begged, I screamed, as I tilted your head back, I saw your chest rise and fall with every breath I gave you. You didn’t wake. You didn’t move. The paramedics arrived, they tried in vain, the chest compression’s they administered were so hard on your little body, I wailed at the shoulder of the paramedic as his hands scooped your body in his grip, desperately trying to pump life back into you. And then, those words, the most crippling words that any parent will ever hear, “I’m sorry my love, but he’s gone.”

As I fell backwards another paramedic caught me, they tried to take me out of the room, the breath like yours, gone from my body, I could not stand, I could not breathe, I could see you. You were gone. 8:47am you were pronounced ‘dead’. On the vast amounts of paperwork, there are no terms that are less cutting, ‘deceased’, ‘dead’, ‘no signs of life’, and the worst, ‘life extinct’. Life extinct. Your life was ‘extinct’. Two words that were spoken to your grandparents that shattered their dreams and their lives, “William’s dead”. There were no other words in that phone call. There were no other words needed, no other words could be spoken, nanny and grandad could hear your mummy wailing in the background, so did the street we live on. The ambulances blocking the road, the front door open, mummy’s wailing pierced the ears of those wondering what was going on. It was only when I walked outside with your fragile and broken little body in my arms, that people knew. Their faces on mummy’s, their heads bowed down. Your beautiful, lifeless little body spoke a thousand words. Mummy was broken. I could write a thousand words for every minute of that day.

That day I took the longest walk of my life, in reality it probably took several minutes, but to me it was a lifetime. As our family were escorted from resus, through the hospital, it had to be me that carried you, my face not leaving yours, it was me that handed you to the mortician, “please, look after him I said. I could not turn and walk away, it had to be him, this strange man, cradling my baby, taking you somewhere unfamiliar. He turned, and through those doors you were gone. “No, no, no, no, please no”. Never was a word spoken with so much power, one word spoken by mummy, a mummy who had just lost the most precious cargo she would ever carry. A word delivered with conviction, a word that encapsulated all of the pain and love I would ever feel. Please. Please give me my baby back, please don’t let this be real, please, God no, please, please baby wake up. Please.

It wasn’t time to say goodbye, it wasn’t time to let you go, I never will let you go. It has been one whole year since my world was shattered. I sit here today, reliving every moment that we lived this very day last year. There were and still are so many goodbyes. It wasn’t just that moment that I knew you were gone, it was being told, it was having to walk out the room whilst they examined you, it was handing you over to a stranger. The goodbyes are not just those first days but the milestones that you would pass that we’ll never reach with you. Your first plaster, the first time you would have said “mummy, I love you”, your first day at school, you first nativity, for me these aren’t first’s instead they are goodbye’s. A future that was robbed from you and from mummy and daddy. We regularly have to say goodbye to the dreams we had.

I miss you baby, I don’t know how to live without you, I don’t know what to do. I function but every step, every word spoken, every little job I do, is done without heart, is done simply because I have to. Life has lost its sparkle, the sparkle that you bought. I no longer trip over toys, I no longer worry about whether there is a hot cup of coffee within your reach, I no longer have to change after you’ve been sick on me, I no longer sleep through the night, I no longer have control over my mind or my thoughts, I no longer get that feeling of euphoria over one little smile, I never get to look in your eyes and cry with admiration, I no longer get to hold you, my sleeping baby, simply because I don’t want to put your down. I never knew that something so small, and so perfect could affect my life as it has, I never knew that I could possibly love someone so much, I never realised how much I would love being ‘mummy’. I never knew what it would feel like to have my heart-broken into irretrievably small pieces, I never knew how much I could hurt. I never knew what it would feel like to live with my heart outside of my body. You have my heart sweetheart, and with you it will always remain.

Loving you is easy, the best and biggest impact anything has ever had on my life. Missing you is inextricably hard. My heart breaks and will keep breaking until I hold you in my arms again, our souls are tied forever, an unconditional love that remains unbroken and more powerful than death. I love you my sweet William.


 

I would like you to think about what the last words spoken to your child/ren were before bed, before they went out to school, before they went back home to their own family, or hung up after calling you. Don’t take life for granted. Make those words “I love you”. Please.


 

www.justgiving.com/williamoscarmead

What is mental health?

Before William died I had no experience of the mental health care in the UK. I’d had no reason to need it personally, nor had I known anyone personally suffering with their mental health. It wasn’t even taboo, because I didn’t even afford it much thought. I would often catch the news, mental health being known as the cinderella service of the NHS. Hard to access, not enough facilities or not the right facilities. This may be true in some areas or for others experiences. But, I can say that had it not been for the care and guidance of the mental health team in Cornwall, I would not be here. They have been the scaffolding that has been wrapped around me for the last 11 months, and continue to be. When I fall I know they are there. When I’m falling and I don’t know it, they catch me.

Anyone in my position will know that time is like a punishment. Nothing you can do to stop it, always ticking by, excruciatingly slow. Initially, days passed in shock, weeks passed in disbelief and months have passed without me even knowing, carried along on the tidal wave of grief, churning me round and round in the eye of the storm, discarding me just where it wants too. In the initial few months, everyone has time, everyone touched by William, and they now have a life tinged with sadness, but albeit a life that they return too, maybe after the funeral, maybe after the inquest, maybe when I returned to work. Slowly people drift away back to their own lives, no time to sit with me anymore to go over and over things like I did back then. I still need to do that, so who do I lean on, who do I turn to when people are living their lives and I am on my merry-go-round of despair and can’t get off? I turn to those who I know will always be there, with a bucket load of time. Whether it be when I have a complete meltdown in the dairy aisle of the supermarket and the crisis team need to come and rescue me or whether it be the day before my scheduled one to one appointment and I need them now. I know I can rely on them to change my appointment.

I have full capacity. I am not mentally ill. I have a problem that they cannot fix. They cannot bring William back. I could be hospitalised because of my suicidal ideation, but knowing they could not fix me, and they would only be removing me from everything that is William would increase the intensity of those feelings. So, what do they do? One thing they haven’t done is give up. But, one thing they have done is respect me and respect my decision. I am a vulnerable, high risk adult. What does that mean?

Vulnerable Adult – A vulnerable adult is described as a person aged 18 years or over, who is in receipt of or may be in need of community care services by reason of mental or other disability, age or illness and who is or may be unable to take care of him or herself, or unable to protect him or herself against significant harm or exploitation.

High Risk Adult – Current or recent moderate / high risk of intentional self harm

So that is what I am. Am I embarrassed or ashamed to be in this category of society? No. You see just like any other debilitating illness, mental health problems are real. They don’t go away when you take medication. You can’t ‘just get over it’. You can’t make yourself want to live. You can’t make yourself eat or sleep if your body is telling you not to. You can’t stop tortuous memories of finding your son passed away in his cot. You can’t stop hearing the call handler’s voice as she talked you through CPR. You can’t ever stop the image of your child in his coffin just pop into your head. You can’t stop that fear of knowing that tomorrow will be just as bad, after all William won’t be here then either. With these flashbacks and thoughts come physical side effects. Chronic insomnia, days with no sleep, after two, three or four days you start zoning out. In a complete daze, losing hours at a time. Sometimes you imagine things to move, sometimes you think you hear something, but you are alone. It is terrifying. Sometimes the anxiety is so bad, regardless of how much medication or exercise you do, you cannot write, because the tremors control you. Sometimes I cannot stand colour, movement, noise. Why? Because I simply cannot process it. The scores of pock marks on my skin, when in an effort to control my anxiety I pick my skin. Or bite my nails. Or pull a few hairs out. Sometimes I don’t want to talk, or involve myself in the conversation. Why? Because sometimes it is such a huge struggle to even be in another person’s company, when all you want to do is be swallowed up by the gaping pit of grief.

Mental health is not a choice. It does not discriminate. No matter your colour, your religion, or where you were born. If it wants you, it will take you.

Everyone in their life at some point will have suffered a bout of depression, most people have seen or gone through trauma like a car crash, a marriage breakdown, or the loss of a parent. But life after losing a child, is an indescribable journey of survival. A life sentence.

People move on. But I am stuck, sometimes the quicksand is deeper and the struggle to fight to get out is just that, a fight. On these days, I know that if I call the mental health team, they will come with their scaffolding, they will build it up around me as high as I need it to go. They don’t just build it and leave. They wait. They listen with compassion. They cry when I cry. They don’t try to fix me, knowing that I can’t be fixed, they guide, advise, and aid. And most importantly they do not judge, they understand. They understand that mental health is not a taboo. It is very real.

I saw one particular psychiatrist for months. We had intensive EMDR sessions, followed by psychotherapy. As a doctor he wanted to fix me, make me better, but he knew, he understood, all he could do was help to make the path I am on a little easier, so maybe when I get to the end, it wouldn’t be the end.

Not many of you know but at the end of January I spent time in a secure psychiatric unit, why? Because I had tried to take my life earlier that week, I was found in time. Had I not been found, I would not be here. Several days later I knew what that feeling felt like. The desperation to be with William, it is not a means of escape, it is not me trying to escape the pain. It is about wanting to be with my son. To sit there and actively know that what you are about to do is end your life is an extremely courageous and brave step to take. Knowing there is no returning. No going back. To be at a point, where for whatever conflict is taking place in your head, people need to exit their life, is not a cowardly way out. For some it is the only way out of a lifetime of enduring pain. For some it is a means of escape, who are we to judge, that whatever is happening in their head is tolerable or not? Because I for one moment ask you to put yourself in my shoes. If you lost one of your children, what would be your oblivion?

When I was in that psychiatric unit it was very apparent that I am not mentally ill. I have heard of schizophrenia, and psychotic disorders, split personality disorders, bipolar as I am sure most of you have, you might know someone with one of these mental health conditions. But wow, those people do not need shunning, do not need bullying, those who are very poorly require the most intensive round the clock care that can only be given in a secure unit. I sat with one man. I won’t tell you his real name, but I’ll call him John. John was 35, that is what he said anyway. He shook my hand and said hi, my name is John. I politely replied, that my name was Melissa. Within 15 minutes we had repeated that very small conversation over 30 times. Did I mind? No. John told me about his job in a shop. Told me about what clothes he sold, he told me about the people he worked with, he told me where the shop was. John had been in that unit for 5 months. John didn’t have a job. John didn’t work with anyone. I don’t even know if he was 35 and his name was John. But it didn’t matter, because for those 15 minutes he was happy. Is it his fault that he has been afflicted with a terrible mental health illness? Does he deserve it? Did he ask for it? The answer to all those questions is no. But John didn’t get a choice. Schizophrenia and psychosis picked him. I was there purely for my own safety. John was there because that is where he was living.

So I ask you, when you see me walking down the middle of the high street, my eyes bloodshot from the lack of sleep, my hair not brushed because when I left the house I was too busy kissing my son’s casket goodbye to remember to brush my hair, that I am on my way to have more scaffolding put up to help me continue the fight. Without that scaffolding I wouldn’t be here. Without the mental health team I would not be here. I can’t help the way that I feel. I can’t just change the way I feel, it’s very real and all-consuming. Knowing I can make that choice tomorrow prevents me from doing it today. It has worked so far. I have a safety net. Suicide is my safety net. I don’t need judging, I don’t need fixing, I need scaffolding. If you want to judge or fix then please don’t. If you want to scaffold, build away. I do not see it as ending my life, I see it as going to continue it somewhere else with my son, for eternity.

Www.justgiving.com/Williamoscarmead

The conflicting emotions of a bereaved parent

William in his final outfit xx

William in his final outfit xx

I can remember back when I sat down on Thursday 18th December, 2014, and I typed into Google ‘baby coffins’, closely followed by ‘coffins for children’. It was about 4 pm and I had been awake since the 14th of December. I knew we would have to pick a coffin, but when the funeral director mentioned to us that we would need to pick one I didn’t want to, I didn’t want to search for it, I didn’t want to see it, I did not want to know. I knew I had to pick it. I knew I couldn’t delay the decision, my little boy was coming home from his post-mortem and he would need somewhere to sleep. It took all day of staring at the screen to raise my trembling hands and type those words into Google. I didn’t want to but I knew I had to, but I also knew I had to get it right, it had to be perfect, this would, after all be William’s final little bed. Rather than moving William into his toddler bed, we were preparing to encase our little boy in the most beautiful satin. A bed that once closed would never be opened again. This decision was agonising, my whole being pulled in every direction. My mind was screaming WHY, WHY, WHY, my heart was screaming NO, NO, NO but my head was trying desperately to fight to make this decision.

We did make a decision, and on Christmas Eve at 3 pm, William’s coffin arrived, and instead of taking him to sit on Father Christmas’ knee with our family, I opened the door at the funeral directors, alone, and I opened the lid, and there was my little William, the fierce pain that drove me to walk forwards, the intensity of love that allowed me to wrap my arms around my delicate little boy and lift him into my arms.

The mother in me that needed to nurture him, he was cold, he needed to be warm. Being torn in two, I didn’t want to be sat there holding my little boy like this, but I knew I needed to dress him. Paul and I had carefully picked out the little clothes that he would wear. The little baby grow, ‘Mummy’s little star’ emblazoned across the front, could not have been more perfect. He is mummy’s little star, and now he really was the brightest star in the night sky. I was shocked how hard it was to dress him, it was easier to dress William when he was wriggling all over the place, but now, he couldn’t help me, his weight so heavy in my arms. We had picked his little birthday outfit to wear. We didn’t want to let these clothes go, we wanted to hold onto them forever, but we knew that his little first birthday party was so happy, we have so many photos of William in that little outfit. So we knew we had to do it. Before doing the little button up on his chinos, I took the opportunity to poke that little bum, still so squidgy. After putting his stripey little top on, I pulled his socks on, and I couldn’t help but let out a little giggle as I talked to him, and made him promise mummy that he wouldn’t take them off. He didn’t promise, but he didn’t take them off. I wish he could. We didn’t put any shoes on him, he didn’t like shoes, the shoes he took his first steps in are now hanging on our wall at home.

The shoes of 'those' first steps xx

The shoes of ‘those’ first steps xx

After dressing my precious little boy, I sat in the box chair, my legs over the arms, cuddling my little boy into me, so tight, and I broke, I hated this, I hated this so much but I loved it, I loved holding him, I felt safe, I felt at home, I felt like we were one. His beautiful hair was still so shiny, so much hair, I ran my fingers through it as my tears soaked their way through. The glitter still in his ear, from the little Christmas Tree he’d made us on his last day of nursery. I now knew I’d made the right decision to ask the pathologist not to wash him. I couldn’t bare to think at the time my beautiful little boy laid out in an operating theatre to be washed with cold water, but I knew I had to ask them not to, I knew I needed to see this glitter in his ear again. There it was. A painful but beautiful reminder of my little boy having fun.

When i knew William was going to have a post-mortem I toyed with the decision of whether to look at the scar. I knew I would. I had to know. I didn’t want to know, but I had to. I did look. A red raw Y right there, it was horrible, someone had touched my little boy, someone had hurt him, but I knew they hadn’t, I knew they’d been gentle, the scar, just like red pen. I spoke to the pathologist that carried out William’s post-mortem, I didn’t want to, but I had to talk to the man who had known my little William, had seen his beautiful little soul. Amongst other things, he said to me, ‘he’s simply so beautiful, such a lovely little boy’ I hated that, but I loved that, even in death he was beautiful. I had asked him not to cut or shave William’s hair, I just couldn’t bear that, to strip him of the feature that made him look like a little boy and not a baby. He didn’t, you could barely see the scar. I traced my finger along the stitches, I slowly covered them up with William’s locks, a scar never to be seen again.

William was 70 cm long when he died. Too long for a baby coffin, but too small for an infant coffin. We placed a little teddy with him to keep him company, a photo of his mummy and daddy on his chest, his arms wrapped around us both. How I wish I was going with him, to not be trapped here without him. Everyday I struggle with this inner fight. Not wanting death to separate us, I fight not to join him, knowing how precious life is, but at times, and more often than not, this fight is impossible. Living, existing, but not really wanting too, but not wanting to die either.

I didn’t want to see William this way, but I knew it was the only way that I would be able to, so I did, everyday until the day I was no longer able to. Sometimes if I was able, I visited him twice a day. Christmas Day I sat with him alone, my coat wrapped around him, his head resting on my chest, I closed my eyes, and for the first time since he fell asleep, I could fall asleep, safe in the knowledge that he was here, with me, where he belonged.

January 3rd, the day the angels came to earth and took my boy away, 9.45 am, that was the last time I ever saw my son. Ever. I couldn’t close the lid, but I did, because I knew it had to be me. How could I close the lid on my son, knowing I would never see him again. Darkness enveloped me as I stood staring at my boy for the last time, but I knew that I had to turn around and leave him. It hurts, it hurts now, it really fucking hurts. It hurts, knowing that was me, it was me who closed that lid, it was me that walked out backwards, not taking my eyes off him. It was me standing in the way of the light that would take him. In that moment I knelt on the floor and I prayed to God to take me too. I begged him, like I begged William to wake up, our cheeks touching, as I wailed on the floor next to him. God didn’t listen and he wasn’t listening now, if he was he wasn’t doing much about it. It’s not his fault though, I know that. There is one person who the ultimate responsibility for William falls, and that is me, one of the biggest conflicts of all. I know it wasn’t my fault, I know that, I would have, and still would do anything to put breath back in his body, but I couldn’t save him. I tried, I fought so hard. I fought with every ounce of my body and my soul to get him the help he needed, but he didn’t get it. There are people out there who know this and they will live with this knowledge for the rest of their lives. But they don’t have to live without their son, they don’t know what it feels like to blame yourself but also to know it’s not your fault, they don’t know the pain of finding their child, dead. They don’t know the pain of picking their child’s coffin, they don’t know the heartache of picking the last outfit their child will ever wear, and they will never know the pain of closing that lid and walking backwards out of a room, never to ever see their child again. I will never forgive them.

So you see, every moment is a fight, every moment is painful, every step hurts. Every breath is taken wishing it was your last, but knowing that it’s not. And i can tell you that the more you love, the more you fall. And I have fallen, I’m still falling, at a million miles an hour.


http://www.justgiving.com/williamoscarmead

The power of a memory

The most captivating smile xxx

The most captivating smile xxx

If a smile could say a thousand words, then this would be it. The smile that has taken my breath away so many times, and continues to do so even as I write this. Even more so because this smile was for me. Those magical deep brown eyes sparkling through those long lashes just for his mummy. How can he be gone? I remember that day, we had just finished getting ready to go and feed the ducks, still on maternity leave we spent every day in each others company, I could think of no better place to be. Grumpus had just taken his socks off, and I had given in and relented, giving him the remote control, fascinated with the buttons I managed to put his socks on successfully, and his shoes, and for those who know Grumpus this was an achievement. It didn’t last long, as soon as I started the car, I heard the familiar sound of velcro ripping, followed by a gentle thud as one shoe, closely followed by the other would make contact with the floor. By the time I had reversed out of the drive I would catch sight of him in the mirror playing with his socks. Did I mind? No. Did I find it funny? Yes. My smile so full of pride I would turn to be met with a smile just as big. These were the moments, single moments in time that remain imprinted in my mind. Grumpus was so much fun. A beautiful soul inside and out.  The power of this memory is spell-binding. It leaves me crippled with tears. Tears of joy that I was blessed to experience them, but tears of complete despair that I will never experience this again, this is all it will ever be, a powerful memory.

Just as powerful and equally as crippling is that moment, THE moment, the single moment in time, one single moment that my life came crumbling down to my feet. As much as I am reminded of those precious memories I am plagued with the one that took it all away. As deep as William’s smile is imprinted in my mind, the moment I found him dead is just as deep. If the call handler of that 999 call stood in a crowd of a thousand people, with my eyes closed, I could pick her out. How she remained calm whilst I screamed hysterically down the phone at her, is a job I do not envy, was she traumatised when she ended the call, after being told ‘life was extinct’, yes. She is human, she will remember that call just as vividly as I do. As William laid on the floor by my knees in front of me, I placed the heel of my hand just above where I felt his ribs join, and I followed her instructions “….and 1 and 2 and 3 and 4, and 1 and 2 and 3 and 4, and 1 and 2 and 3 and 4….rescue breath 1…..rescue breath 2…..and 1 and 2 and 3 and 4, and 1 and 2 and 3 and 4….” and it continued for an agonising 3 minutes and 44 seconds. Every second that I watched the digits change on the phone display 3:40, 3:41, 3:42 I felt my life slipping away, the paramedics came thundering up the stairs, I continued CPR to the call handlers steady rhythm, 3:43, 3:44 then the paramedics took over. A mask was placed over William’s mouth and the I could see the paramedic feeling for a pulse in William’s neck as he squeezed the breathing bag, desperately trying to get oxygen into my baby. The sleeping bag William had spent his last night in had been pulled off, his little vest cut off, the second paramedics hands reached round each side of his chest securing pressure, his thumbs compressed William’s chest with so much force, over and over and over, until he stopped. The paramedics took one glance at each other, and I knew. As the paramedic removed his hands from William’s chest I screamed, he turned over his left shoulder, gasping for breath amongst screams, I was delivered the most powerful memory ever to be imprinted in my mind “I’m sorry my love, but he’s gone.” Perhaps the most powerful words ever spoken to me. A power of a memory, a definitive moment in time, the power that has to change your life is quite astonishing.

I had only ever heard of Post Traumatic Stress Disorder (PTSD) in the news. I never really understood what it was, I certainly never understood how debilitating it is, it has left me completely defenseless; powerless to act against by body’s own mechanism to remember, to visualise, to relive that moment. It leaves me crippled unable to function. Unable to circumvent the most harrowing moment of my life. It doesn’t matter how much time passes, I still remember this memory as much as I remember the beautiful memory of his smile. I don’t get to pick which memory I will be thinking about at any given moment. All it takes is to hear someone say ‘1’ and the 2 and 3 and 4 shortly follow in my mind. My whole mind and body transported back in time, I have no choice but to process that moment all over again.

I am completely at the mercy of my mind. Whatever memory pops into my head is how my day will go. The mind is the most powerful tool we have, but it is so very dangerous. It captures every memory, not just the most amazing and captivating ones, but also the most painful, enduring ones. I don’t get a choice. To know this much pain is to know this much love. All consuming, in everything I do.


 

www.justgiving.com/williamoscarmead