William is off to the Houses of Parliament

Balloon for my William xx

Balloon for my William xx

Tomorrow Paul and I are off to London, with William of course, to share William and his legacy with the world. We have been invited to the Sepsis Parliamentary Reception in the Houses of Parliament. The event is with parliamentarians and clinicians to discuss sepsis, and to learn more about the support available and what more can be done around sepsis treatment. The Rt Hon Jeremy Hunt, Secretary of State for Health will be speaking along with other key speakers.

As you all know it was sepsis that ultimately took William’s life, a complication of pneumonia. The UK Sepsis Trust has been working with parliamentarians to raise awareness of sepsis. Sepsis is a life threatening condition and arises when the body’s response to an infection injures its own tissues and organs. Sepsis leads to shock, multiple organ failure and for 37,000 people every year in the UK, it leads to death. William is one of those. Sepsis is an easily preventable illness and easily treatable. We hope to raise awareness by sharing William’s story with the world, to lower this number as much as we possibly can.

On Thursday we will then be attending the book launch of ‘Three and a half heartbeats‘ a novel written by Amanda Prowse. This work of fiction takes you on a journey of a young family who lose their young daughter to sepsis, and the pain that follows. All the proceeds from this novel will be donated to the UK Sepsis Trust. Paul and I are attending after being invited by Amanda Prowse to highlight that the words so eloquently written in her book happen in real life. We will be meeting other families stranded in the same position as us, bereaved by sepsis.

I have made little boxes containing a balloon with string and a little notecard for a message to give to those who wish to release a balloon for William, to send all the way to heaven for William to play with. I have made sure that the balloon’s that we use are biodegradable so no harm on the environment.

We will be taking William with us, tucked safely inside his teddy. We’ll be taking William with us on every step of our adventure, an adventure for him, a journey to spread the word, and a journey to share William with the world. If you would like to release a balloon for William, please do, they were his favourite toy. He loved them, if possible we would appreciate you using a biodegradable balloon so it doesn’t cause any harm to the environment. If you do, please send me an email with a photo of you with your balloon and I will post it on my blog, amotherwithoutachild@gmail.com please watch this space for William’s big adventure xxx

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7 thoughts on “William is off to the Houses of Parliament

  1. My heart breaks for you every time I read one of your posts. Nine months after our son died I rushed my husband to the emergency room with an extremely high fever. They did x-rays and other tests and sent him by ambulance to another hospital. As we were leaving the first hospital, the nurse off-handedly said to me, “He is turning septic.” I had no clue what sepsis was. At the second hospital, he was put on a floor with nurses who did not know what they were dealing with. By the grace of God, a good friend of ours who happens to be a nurse practitioner came to visit him shortly after he was admitted and begged for him to be put in intensive care. The nursing staff and the supervisor on that floor kept balking and saying “Oh, he’s fine. We’ll check his blood pressure every hour instead of every four hours.” They even went so far as to lie and say that both of the blood pressure machines they were taking his pressure with were broken and insisted that their “perfect blood pressure” (120/80) that they took manually was accurate. Our friend fought with them for several hours as we watched his blood pressure continue to drastically drop, all the while telling the nurses that he had sepsis and insisting that he be put in ICU. Finally, after hours of our begging, they moved him to ICU. The ICU had to give him three shots of adrenaline to get his blood pressure up and he remained in intensive care for five days. They never determined what caused the infection. If it hadn’t been for our friend “happening” to be there, I’m convinced I would now be dealing with the grief of losing my son as well as my husband. The medical field is definitely in need of awareness when it comes to sepsis. I thank God my husband is alive, thanks only to our friend being in the hospital with us that night, and am grateful that you have the strength to spread awareness of this deadly disease in order to save others’ lives, even though you are doing so with your own broken heart.

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  2. I am looking forward to hearing about your experience in Parliament. You, Paul and William will have such an important input in raising awareness and helping people to recognise the symptoms of this condition. I would love to send a balloon into the heavens for William to enjoy -what a lovely way to remember him. You are amazing, Melissa. So humbled by your strength to get out there and be an advocate. You inspire so many people! Lots of love xxx

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  3. Good luck to you — it is so important to raise awareness. As you know, the doctor who saw my son also missed the signs of sepsis.
    I will be thinking of you, and your husband, and keeping William in my heart.

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  4. I know that I will be seeing you on Friday but don’t forget my balloon we can set it free in my garden then perhaps Alan will see it.xxx

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  5. I am from Winnipeg, Canada, and every year I raise monarch butterflies in order tor release them with students when the new school year begins. Tomorrow I’ll be releasing two butterflies with them. I always tell students that because the monarch is flying to the heavens, they can say a prayer for someone in need. I will say 2 prayers with my 2 butterflies, one in honor of William and one for you and your husband, that you’ll all find comfort in your loss. Know that the God who loves William also loves you and sees every tear that you shed.

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      • And I forgot to say, I will send a picture tomorrow as well, of the “William monarchs”. Our North American monarchs are about to migrate to Mexico, a journey of over 2000 miles! So they may seem delicate but they are very tough as well. Prayers for you for your journey of grief as well, a journey that requires a delicate and at the same time, a very tough heart and soul!!

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