When OK is not OK

It’s a mask you know, one that I put on when I get to the checkout to pay for the shopping, when I go into the office, when I slip out of bed in the morning, that is, when I can bring myself to even get out of bed. You see, when I take the mask off my world is still at a stand still, nothing has changed underneath, when I wake up I still ask myself “why am I still here?”, today is no different to yesterday. No day gets better or any easier to live with, and as time passes my new life becomes more of a reality. Each day, with practise it becomes easier to hide the sorrow behind the smile, hide the emptiness behind the meaningless tasks, superficial tasks that now replace what was once a hectic, flurry of nappy changing, organising little clothes for nursery, brushing tiny little teeth, fitting together the wooden train track for the hundredth time on a lazy Sunday because William liked to take the pieces apart and put them back in the box, to only tip them back out two seconds later. Tasks that made me ‘mum’, tasks that I revelled in and couldn’t get enough of, no matter how many times I repeated myself they were never tedious or annoying, because that’s what mum is, that’s what you sign up for.

When I found out that a tiny little person was invading my belly, growing into my beautiful, perfect William, I knew that no matter what I would never be alone, I would always have a constant in my life, someone to love and love me back. Someone who needed me, gave me purpose and shaped my life. You see, William did that, probably without realising. William gave me such unconditional love, and needed me so much. I could look deep into those trusting brown eyes and know I would never be alone. I know I am not alone, William’s dad, Paul, is an integral part of my life that I wouldn’t  be without, but the love your child gives you, the love William gave me, with every look, with every kiss, with every touch was a love with no boundaries, limitless and endless. I miss this love, the warm, wholesome love that makes you feel fuzzy inside.  I miss everything about William, and having that outlet for my love. As the days succumb to the nights, I miss him more and more, like they say, absence makes the heart grow fonder.

Now just over 12 weeks from the day that my world stood still, nothing has changed. The minutes passing only make my stomach churn more and more, knowing that this is reality. This is life. From the day that William died we were thankful to be cocooned by family and friends. Wrapped up in love. Friends helping with day-to-day tasks like cooking and cleaning, taking you to appointments because you can’t concentrate long enough to drive yourself. And most importantly, those people who are just ‘there’ not saying, or doing anything, but just there, so when you break someone is there to pick you up, when you want to cry, someone will cry with you, when you want to be angry, someone will listen. But inevitably everyone else’s lives have to return to normal, people are hurt, people carry on grieving, but their worlds haven’t been turned upside down. Their lives, although tinged with sadness haven’t changed. We have to re-build our new lives, a way of life we did not choose to have.

So, over the last couple of weeks I have been into work a few times, although under no pressure to do so I know at some point I have to, I have no choice, I have bills to pay that won’t pay themselves. Being in the office doesn’t bother me, my colleagues are friends and two are William’s Godfather’s, but it is hard. Every time I walk through the door I brace myself for the question how are you? in its many forms. I already have a stock answer ‘you know, up and down’. Knowing full well the person enquiring really has no idea how to deal with my response should I be completely honest. No, I’m not ok. My son is dead. I feel no more ‘ok’ now than I did the day he died. When will I ever be ok? When can ‘this’ ever be ok? It can’t. I spent yesterday crying when I discussed the muscle biopsy from William’s post-mortem,  not crying because he’s given me a mother’s day card he made for me at nursery. I know that everyone asks because they genuinely care, I really know that, that is why I have a stock answer. The real answer is exhausting, exhausting to process, exhausting to vocalise.

Although I am not under pressure there are certain expectation’s in society that at some point you are ok, moving forwards, living with it or whatever society calls it. But when is that? You might see me in the supermarket or walking down the street but really I still only want to curl up In a ball on the sofa, but I can’t. I don’t want to get out of bed, but I have to. I don’t want to talk to anyone, but I have no choice. Life is happening, because I have no choice, because it is happens around me. I am continuing to live even though William isn’t. I get up and I put the mask on, the mask that allows me to be a bystander in life. The mask that really hides the grief. The gut feeling when you wake up in the morning and you can hear the silence, instead of being woken up by the sweet sound of babbling. Standing at William’s bedroom window alone when I close his curtains for the night, staring up at the stars and saying a prayer, not laying my tired little boy in his bed and kissing him goodnight. Walking out of his nursery, my eyes stinging with tears, rather than gently whispering I love you in his ear. Every tiny little detail is played out in my head, every scenario like a video player stuck in one moment of time, no matter how much time passes, how many smiles or laughs you see, I will always be part of the club, the club that no-one wants to join, the worst club anyone can ever be a part of.

A club that I will be in, forever.

4 thoughts on “When OK is not OK

  1. Hey, i wish i can give you a hug.. I’ll pray for you, for more strength, more will power.. I can’t imagine how you’re feeling, i can’t tell you it’ll get better cos i don’t really know how you’re feeling.. I can’t even imagine this happening to me, it immidiately bring tears.. I’ll pray for you, take your time to heal, in due time it’ll happen.. Hang in there. xx Be strong


  2. I hope to read more of how you carry on & to see more of how you face life; even if your honesty is difficult to listen to, you are a human being whose words are felt.
    You are.
    Thank you for your time & I wish peace for you.


  3. I have come to your page many times, I have read all of your posts, and I have commented on some of them, but I struggle to find words to give, because I know that anything I say will not come close to the depths of your pain. I feel a kind of responsibility to bear witness to your grief – maybe a solidarity with you as mothers together, maybe because we are women, maybe because your emotions come through the screen with such *feeling*, certainly to ensure that your sweet William is remembered… it’s hard to explain, I think. Mostly I just want you to know that even when you feel alone on this harsh path, there is support & solidarity, comfort & kindness, and shared tears from many of us along the way.


  4. I am not a mother so I can’t even begin to fathom the magnitude of your pain, but as I read your blog my heart physically aches for you and I sometimes have to stop because it is so painful just to read. You may feel at some point like society expects you to be “making progress and moving on” but don’t ever let that pressure you to behave a certain way or mask your emotions, if 5 years down the line you have days where you still don’t want to get out of bed, then you shouldn’t have to. It’s your life and your pain, you should never be made to feel like a burden or that your bringing other people down or that sympathy is running out. I hope you have someone who is always just there no matter what who you can lean on and cry with. You’re so incredibly brave and strong, if I ever have children of my own I hope I am at least half the mother that you are. XXXX


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